What It Feels Like: Destroying a thyroid gland to treat Graves' disease

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What It Feels Like: Destroying a thyroid gland to treat Graves' disease
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Jenika Hamilton spoke with healthing about learning to advocate for herself, living without a thyroid and what brings her joy - via healthing_ca health

"I was given a liquid that was basically a cup of water. It tasted like nothing. [The healthcare workers who were wearing] hazmat suits told me to exit the hospital as quickly as possible," says Jenika Hamilton.Jenika Hamilton lived in pain for eight months before getting a diagnosis of Graves' disease. SUPPLIED, the immune system attacks the thyroid gland, causing it to produce too many thyroid hormones.

I was in a choir at the time, and standing for long periods of time was difficult. But I was also running with my friends and they were confused as to why I could run, but couldn’t stand. What they didn’t know is that after I ran, I was bed-bound for two days. I didn’t look injured, so they thought I was just faking it. Eventually, I saw a physiotherapist.Yes, I injured myself in January, and it wasn’t until July or August that I actually saw someone and got it treated.

I worked at a clinic that had a naturopath. [I mentioned that] I felt really fatigued all the time and I didn’t really know why. [She told me to] have my TSH and iron levels checked. The TSH levels were low, so I was referred to an endocrinologist.After the first set of tests, it was found that I didn’t have the TSH receptor antibodies to confirm a Graves’ diagnosis [even though I had the symptoms]. Because of that, my first endocrinologist [didn’t think] that I had Graves’ disease.

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