Personal Perspective: Having symptoms that wax and wane in a world that doesn't accommodate the dynamic nature of our bodies and minds can be frustrating. This analogy can help.
Societal perceptions of disability can be harmful when they don't take into account individual experiences.during a follow-up visit after an accident-related sacroiliac joint fusion surgery, where I subsequently also broke several vertebrae. I don't recall the exact details, but I do remember his comment really stuck with me:
From a daily living-functional perspective, it made sense, as mobility impairments and accommodations are visibly hard. But in my gut, I couldn't help but feel as if he was missing something that I couldn't yet articulate. It wasn't until years later that I realized I was now a person in the second category of people he mentioned: a chronic back pain sufferer with unpredictable good days and bad days—trying to go about my daily life the same way I had before my accident.
"In the theory, each spoon represents a finite unit of energy. Healthy people may have an unlimited supply of spoons, but people with chronic illnesses have to ration them just to get through the day.""I start each day with 12 spoons, but depending on how I feel, the spoons are used differently. On a high-pain day, a relatively simple task of showering or getting ready for the day can take four spoons. On a low-pain day, that same task might take just one spoon.
Variables such as weather, unforeseen flareups, and the rise and fall of work and family obligations require a fine attunement to our bodies and surroundings, as well as an ability to be open and honest with our friends, colleagues, and loved ones. This can feel counterintuitive, especially if we've spent much of our lives responding to others' needs or jumping at opportunities to be involved in activities and projects., and yoga) a priority.
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