'To other parents out there who have children with special needs, I say this: If you are feeling fear of the unknown, know that is to be expected. Also know that you have a choice in how you face that fear.' One mom shares her story:
When our daughter Mia was diagnosed withAt first it was relief. We had seen countless doctors and specialists searching for a diagnosis, so it was reassuring to know our daughter wasn’t suffering from a life-threatening condition .
When she wanted to bike with other kids around the neighborhood, we got her a custom made bicycle. When she asked to sail, snorkel, surf and play tennis – we said yes. That’s what led to ice skating too. My oldest son is a hockey player so I’ve been carrying Mia to the ice rink for his practices and games ever since she was born. My son had started skating at the age of 4, so when let Mia turned 4, we let her try it too. She picked it up quickly and soon fell in love with the sport.
I knew it would be a challenge for her. Because of her dwarfism, Mia’s arms and legs are shorter than the average 13-year-olds. And just three years before, she had undergone an incredibly difficult and painful surgery to correct her severe bow-leggedness . It had taken several months for her to learn to walk again.
Two years later, she is still a member of this group and has competed with them several times – including twice in Lake Placid. Her teammates are amazing. The girls sincerely support and love each other and they are all so talented. This year their club came in second place out of sixteen clubs from all along the East Coast and when four trophies were handed out at our club’s end of the year award ceremony, the one for outstanding sportsmanship and hard work went to Mia.
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