Mom urges state to add Duchenne muscular dystrophy to newborn screening panel

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Mom urges state to add Duchenne muscular dystrophy to newborn screening panel
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Duchenne muscular dystrophy affects at least one in five-thousand male births each year. Girls can be carriers, too.

INDIANAPOLIS — A local mom is pushing for a rare and deadly disease to be added to Indiana's newborn screening panel.

13News has been following the journey of one boy with Duchenne for a decade now. When Jordan McLinn was diagnosed, there were no treatments available. His family was told he didn't have much time.and now there are eight different therapies for Duchenne.

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