Priced at $2.1 million, a one-time infusion to treat a fatal genetic disease in babies is the most expensive drug ever marketed in the U.S. So states are trying to limit how much they have to pay if it fails to work. commonhealth
“We think it makes sense to pay for innovation for a drug that could really work. And we think the Commonwealth, with public dollars, should not pay for something if it doesn’t do what it’s advertised to do,” said MassHealth director Dan Tsai.
for Zolgensma. The company said in a statement that these so-called value-based or outcomes-based agreements are becoming routine as well. It says it is in"active discussions" with Massachusetts. “Massachusetts is kind of the vanguard on a lot of these prescription drug pricing issues,” Salo said. “They are blazing a trail that every other state is watching and saying, if Massachusetts can make this work, we think we can do it too.”
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