Dead ends and delays plagued Kevin Kwong’s search for a diagnosis.
Kwong initially treated the rash himself with the topical steroids he uses for eczema. When that didn’t work, he made his first virtual visit from his home in Emeryville, California. The nurse diagnosed him with herpes, and prescribed an antiviral medication.
The urgent care doctor didn’t think it was monkeypox — Kwong’s spots were clustered together and looked different from the monkeypox rash pictures the doctor had seen. “They were researching while I was in this [patient] room, and back and forth on the phone at the CDC. I expected myself, as a patient, to be in the dark, but I didn't realize how little information was also given to providers and how unprepared they were as well,” he said.His lesions were swabbed, but the monkeypox test result wouldn’t come back for at least a week. He spent 12 hours in the emergency room before being sent home.
“I was even scared to just go to sleep because I didn't know what I would wake up to. I didn't know if my symptoms would progress in a dramatic and terrible way while I was asleep, while I couldn't watch what was happening to me,” Kwong said.After days of appointments and very little sleep, Kwong decided to make the trip to the UC San Francisco hospital. It was a tough decision. He had just spent 12 hours in another emergency room that same day.
“I thought, wow, this is really, really extensive disease,” Chin-Hong said. “I've seen other cases of monkeypox before, but they're very limited. I would say Kevin is probably in the top 5% of severity of diseases, and most people probably wouldn't get it as severe as Kevin.”
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