“He's just been our biggest blessing.'
“But I'm trying to also just experience Jones as Jones and not as different than any of the other kids,” she added.
“[Down syndrome] was not on my radar at all. And I refused to believe it. I just wanted to hold him and for everything to be OK,” she continued, saying that she was heartbroken that Jones needed to remain in the NICU for weeks. "I was just grieving all of it and that the experience was so different from what I had expected. Waking up the next morning hearing all the babies crying down the hallway while I was in the room alone, it hurt so much."
Now at home with his family, Jones — who has another surgery coming up in a few weeks — is a “sweet and smiley” newborn and “the easiest baby.”Her oldest daughter Ricki has been a huge support, and sent 47 roses to the hospital to represent Jones’ 47 chromosomes. Emily has also been leaning on her husband Tyler and taking each day as it comes.. "But I wouldn't change my life for anything. And I wouldn't trade Jones for any baby in the world.
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